It’s been a pretty eventful weekend since I posted last.
My blood results came in late Friday. My regular family doctor called me. He said he admittedly wasn’t trained to read these tests, but that I have elevated white count and inflammatory markers. However, the specific test for rheumatoid came back NEGATIVE.
Now, wait. Yes, you want to say this is great news. But it’s not. All it means is that they have no idea what’s wrong, just that something is. My heart sank when he said negative because EVERYTHING about it fits my symptoms.
Later I was able to access my lab results through my online portal and I started researching. Turns out, my white count is 17 times the normal amount. That would mean I’d have to have a raging infection that’s going treated.
But I have no active infection.
My inflammatory markers were so high, they were hundreds of times what “normal” should be.
So, regular doc referred me to a rheumatologist and I saw him today. Here’s what HE said.
I definitely have an auto immune disease. He said it’s not common OR uncommon for people with RA to test negative on this test, especially if the RA is more advanced. He DOES suspect RA. He had some blood drawn for another type of test that can hopefully confirm this and get me diagnosed. In the meantime, he put me back on steroids (a VERY low dose) and I’ll see him in 2 weeks when the blood results are in – and at that time, hopefully I will have better answers.
Floors. Still not done. DON’T get me started. Hopefully tomorrow.
Projects. Since my physical condition is deteriorating so quickly, I’m trying to take on projects while I’m still able. I’m already unable to some things I had planned like sanding and stuff, but I can still do lighter easier work. This was an easy one. I painted my kitchen and then put the tree up. See the hooks that look like branches? Kinda cool, eh?
Emotionally. Don’t ask. Same. Worse sometimes. Never better. Just the same or worse.
Physically. Up and down, but overall pretty crappy. My equilibrium is really off and Lyrica is still making me stupid, so I’m not driving much. I’m using Michael’s cane from time to time when I feel really wobbly. My awesome neighbors have been running my errands and even shopped for me (with a list I made) and left groceries at my doorstep today which made me cry. It was seriously one of the most loving gestures. The Lyrica IS starting to work on the nerve pain. The fire in my legs and feet is gone. I’m having issues with loss of sensation.
I think I decided to give PT a try. I need this surgery. I’ve considered a rehab facility for my recovery. I’m just not sure what other option I have. I’ll need round the clock care for many weeks.
I’m not sure how I feel about Thursday. I guess I’ll know on Thursday.
Thanks for reading. That’s all for today.